This is Taysen: He is 10 years old. He loves life and lives each day to the fullest. He loves swimming, animals, and his brother River.Taysen

He loves talking to people and making new friends.He even would like to be a zoo keeper someday.

Taysen faces some extraordinary challenges because he was born with SMA.

What is SMA? Spinal Muscular Atrophy (SMA) is a motor neuron disease. Motor neurons affect the voluntary
muscles that are used for activities such as crawling,walking, head control, and swallowing. It is a relatively common “rare disorder”. Approximately 1 in 6,000
babies are born with SMA. SMA causes weakening of the muscles throughout the body. It does not affect the mind, and children with SMA are often unusually bright and sociable.

There is no cure for SMA but there is hope. SMA was recently chosen as the disease closest to treatment out of 600+ neurological diseases. The Gwendolyn Strong Foundation is a nonprofit dedicated to raising awareness and funding research focused on ending SMA. You can check
out more info his website www.taysenlangstraat.org and www.thegsf.org.

Gwendolyn Strong